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Patient Tool Kit

Have you been recently diagnosed with autoimmune hepatitis (AIH)?  We have the most important things you need to know about AIH so you can quickly get up-to-speed on this treatable disease and know what to expect as a patient. 

 

AIH: The Basics

Autoimmune hepatitis (AIH) is a chronic disease that causes patients’ immune systems to attack their livers and sometimes damage them. With treatment, most patients don’t need liver transplants and have normal life expectancies.

New Patient Support Group

The AIHA has a support group for newly diagnosed patients that meets quarterly. Send us an email at info@aihep.org to join. This group, which is open to patients who have been diagnosed within the past year and their family members, provides basic disease education and support. AIHA Executive Director Craig Lammert, M.D., who is a hepatologist typically attends these meetings to answer general questions about AIH.

Your Care

We know how stressful an autoimmune hepatitis diagnosis can be for patients and their families. We've put together the following resources that we hope make it easier for patients and families to navigate this disease:   

Choosing the right doctor: How do you know if you're seeing the right doctor to treat your AIH? We can help.

Questions for your doctor: We break down what questions you should be sure to ask your doctor at your next appointment.

Tips for doctors visits: We'll help you get the most of our medical appointments.

FAQs for newly diagnosed patients: Check out the top questions that newly diagnosed patients have. 

Be sure to check out other resources on our website, like causes, symptoms, diagnosis, treatments, and living with AIH.